Entitlement of the Able-Bodied
April 19, 2011 2 Comments
Today, my brother and I were talking about my recent post. His response to it was basically “Yeah, but some people need to know.”
And who is they, exactly?
Do I have a legal obligation to share private medical information? No. Could it be a moral one? I don’t think so.
While others may be frightened or feel helpless while watching me actually be unconscious and helpless on the floor–I don’t believe I’m under a moral obligation to assuage an aspect of fear that others may feel if I have a seizure in their presence.
You see, no matter whether or not bystanders know I have epilepsy, I’m told it is incredibly scary to watch. The unknown is frightening, yes, but being helpless to prevent or stop a seizure is also frightening.
And, um, people? I’m the one that actually is helpless while having a seizure. You may feel helpless, but you are still conscious and have complete control over your body, yes?
Right. So forgive me if I’m not exactly sympathetic to your plight.
Despite that fact, I have on numerous occasions, been subjected to the indignation of others who felt they had a right to know. Not only that, but my failure to disclose my private medical information was a failing of mine, a betrayal of the highest order. And they. were. pissed.
I’ve been lectured, berated, abandoned while semi-conscious, told I’m no longer welcome in the home of a friend, threatened, and more.
That does not endear me to trust you with knowledge of my disability.
You are not entitled to anything. I am not morally, legally, or otherwise obligated to tell any one person a damn thing about me.