Special Rights in a “Normal” world

During a conversation with a friend last night, my epilepsy came up. We were talking about housing, and something my friend said really struck me.

“You know, you probably could have gotten private [on-campus] housing because of your epilepsy.”

I was dumbfounded for a moment, stumbling over my words. While I didn’t get angry or upset, those words resonated, and they bothered me. My friend had only the best intentions. I only replied that I hadn’t been comfortable disclosing my medical issue, and that it’s better that I live with someone anyway.

But that’s not the point. I had never, ever thought about using my epilepsy for personal gain, and basically, that’s what that would be. I have no need of having a private room.

That conversation was my first experience with someone focusing on my epilepsy as a means for gain or personal benefit. Differently-abled people experience this all the time from abled individuals. Accommodations for us are often labeled “special rights.” See, we get to sit down all day! We get deadlines extended! Private housing! Aren’t all these things great?

No.

“Special rights” is a term I view with contempt. It’s a malicious, inconsiderate, ignorant, and hateful term. We call ourselves differently-abled in a world that views us as other. We call ourselves differently abled because the world views us as other. We’re some kind of anomaly. We’re not normal. The world isn’t constructed with us in mind. Hence, the need for “special accommodations” for us. If this world was truly one that accepted people in all their glorious diversity, “normal” would be an extinct, useless word, and accommodations wouldn’t need to be made. Our cities, homes, and schools would be constructed with everyone in mind. As it is, these places are constructed with only the “normal” in mind, and if we’re lucky, the rest of us are tossed a breadcrumb or two.

That is not to say, that everyone who says things like this are hateful. My friend is not hateful. He is equally contemptuous of the term “special rights.” But he is privileged in a few ways, and one of them is his ablism. Many incidents like mine are due to ignorance. However, this is not to say that their ignorance is acceptable. Everyone should make an effort to understand, or at least empathize, with others who experience the world differently. This makes us better people, and it slowly improves the lives of Different People.

All of this to say, that to me, epilepsy is normal. I live my life around my epilepsy. I have no other choice. It is not “special” and it is not something I have for use to my benefit. It simply is.

I will take medication twice daily for the rest of my life. I will still have partial and grand mal seizures. Stress and sleep deprivation are triggers, and I cannot avoid those. Sometimes I have to stop and sleep. Sometimes that means I can’t meet deadlines, or fulfill commitments. That’s not a special right. That’s something I have to do to ensure my safety.

It’s not a special right. It simply is.

Advertisements

About Brittany-Ann
Brittany-Ann is a proud, self-identified feminist with fictional tendencies. She currently writes for LouisvilleKY.com and moderates at My Fault I'm Female. She smokes camels, reads Dumas, and navigates a conservative state as "one of them darn liberals."

3 Responses to Special Rights in a “Normal” world

  1. Dominique Millette says:

    I hear that, loud and clear. Our rights are no more “special” than what someone with a cast on a broken leg needs, or how a patient with heart attack needs to recover before going back to work. It feels like any accommodation that isn’t temporary becomes a special right. It’s just illogical. A disability is something that you have for the rest of your life, in most cases. So yeah, it’s always there.

  2. Brittany-Ann says:

    People take their ablism for granted. We’re simply pitiable, in their arrogance, but there’s no understanding. The comparison to temporary conditions is a good one.

  3. Pingback: Tweets that mention Special Rights in a “Normal” world « A Bookish Beemer -- Topsy.com

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: