A Glimpse of an Employed Epileptic
November 28, 2010 6 Comments
When I started my new job[1] back in August, I was excited—I was getting health insurance! Yay! The insurance company couldn’t deny me based on my epilepsy! Yay! Then I started to fill out the paperwork, and read all the information packets. And guess what I saw? That any pre-existing condition-related doctor’s visits, medication, etc wouldn’t be covered for a year. A year.
When I informed my manager about my epilepsy, and told them that if I had a seizure, I’d have to sleep it off, therefore possibly missing a day of work, and asked what I needed to do—they told me I needed to bring a doctor’s note[2] (with that doctor I can’t see about my epilepsy with my insurance for a year), or call in and take a point. A point is supposed to be a penalty for not coming to work just for funsies. No mention of making up that work once I recovered.
When I told my supervisor that if I had a seizure at work, I do not want an ambulance called unless I was bleeding from somewhere I shouldn’t be, and to instead call my emergency contact to take me home, I was told they’d call one anyway because “if you have a seizure I’ll probably freak out.”
Oh, the equality is overbearing. The sensitivity to the neurologically atypical is gut-wrenching.
Welcome to America.
Now, before I get any lectures on How The Real (American) World Works, let me say: I know. I’m saying it’s wrong. I’m saying that the hoops one has to jump through, if neurologically atypical as I am, just to ensure you’re not fired because of being neurologically atypical, is ridiculous. That I should first have to reveal my medical history (which is private) to my managers, then explain to them what epilepsy is, THEN explain how it affects me, to finally say that it might prevent me from coming into work someday in the future, maybe, is ridiculous. That my supervisor grills me on what it’s like, out of curiosity, with several co-workers in earshot, is insensitive and, well, ridiculous. That I’m grilled on what medications I’m taking, and gosh, why don’t I have a medical bracelet? Is ridiculous.
In short, I’m saying the insensitivity, the ignorance, and the spectacle made out of my disease is appalling, and that it should not be so.
[1] An office job
[2] An epileptic doesn’t need to see a doctor every time zie has a seizure.
Seizures in the News
November 30, 2010 Leave a comment
This article concerns me. The headline and the lead-in speak of the seizures that Brian David Mitchell, the man who kidnapped Elizabeth Smart, has been suffering. The article quickly moves on to discussing Mitchell’s mental health.
Mitchell’s lawyer, the article says, is presenting the “insanity defense” and talks about both Mitchell’s, and his family’s history of mental illness. I find it curious that the author, Jennifer Dobner, chose to take the article in this direction, since after all, the headline is “Elizabeth Smart kidnapper suffers seizure in court.” By taking the article in this direction, it seems to imply a connection between seizures and “mental illness” or “psychosis disorders” which is not the case.
I do not and will not engage in armchair diagnosing of Mitchell—that is no place of mine. That is between Mitchell and his doctor.
My problem is with the tendency to equate bad deeds, such as kidnapping and rape, to mental illness, thereby implying that anyone with mental or psychological problems is a bad person—a ticking time bomb, if you will. It marginalizes those of us with epilepsy, depression, bipolar disorder, and many others, for no good reason other than different=bad. In fact, throughout much of history, those who were different were often deemed “mad” and power was wrested from them, and they were killed, or left to rot in a hospital, prison, or later, a “mental institution.”[i]
This also implies that if you do something “bad” then you must be “mad.” It implies that no good, normal person could or would ever do bad or terrible things—so if one could prove one was normal, then they could not possibly be guilty of any crime or wrongdoing. The wolf in sheep’s clothing, if you will, feeds and benefits off this idea.
This line of thinking is intellectually lazy, it is bigoted, and it has dire consequences for society.
Mitchell did a horrible thing to Elizabeth Smart, and I hope she will find peace, closure, and healing. But Mitchell’s deed does not make him mentally ill. If he does suffer from a “delusional disorder” or some other mental illness, that mental disorder does not make him a bad person. If he is ill, I hope he is able to find a way to live peacefully with his disorder—whether or not he accepts treatment. As of now, he has been deemed competent to stand trial, so he will face justice for his deed—but only that. His deeds. Not his illness.
[i] And this is why I’m skeptical of a family history of mental illness—because science and medicine wasn’t where it is today, and so differing from cultural and religious norms were often used in lieu of science. The victors write the history, so we have no objective basis for diagnosing people long dead of mental disorders.
Filed under Culture and Society, epilepsy, News & Commentary Tagged with Brian David Mitchell, Brian Mitchell, disablism, Elizabeth Smart, Elizabeth Smart case, epilepsy, insanity defense, kidnapping, mental disorders, rape, Salt Lake City, seizures